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Hospitals Need to Defer to Families on Life-and-Death Issues

Posted on Wednesday, August 10, 2022
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by Outside Contributor
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5 Comments
Hospitals

Hospitals need to back off their authoritarian “we know best” posture and respect what a patient’s family wants.

At 10 a.m. Saturday, Royal London Hospital stopped life support for 12-year-old Archie Battersbee, against his parents’ wishes. He was dead by 12.15 p.m. Millions had followed his case since April, when his mother found him unconscious on the floor.

Apparently, he took a dangerous dare promoted on TikTok to hold his breath until he blacked out. Archie damaged his brain and never regained consciousness.

Watching Archie’s family battle the medical establishment raised a troubling question: Will imperious hospital personnel get to dictate when the plug is pulled on someone you love? Hospitals are cutting lives short, defying families.

After Archie spent months on a mechanical ventilator, his parents wanted to move him to hospice, at private expense. But the hospital refused to release him, instead insisting on terminating life support.

With the aid of the Christian Legal Centre, the parents went to court to stop what they considered an execution. They argued that Archie’s heart was still beating and tests confirming brain death had not actually been done.

The British High Court sided with the hospital.

Archie’s fate resembles the death of another British child, 23-month-old Alfie Evans, in 2018. Pope Francis was ready to take Alfie to a facility in Rome for brain-damaged children. An air ambulance stood by, but the hospital refused to allow the transfer and ended the toddler’s life instead.

British courts ruled that “the hospital must be free to do what has been determined to be in Alfie’s best interests.”

That’s a phrase hospitals in the U.S. and the U.K. use often to override what parents want.

What happened to these British families can happen here, too. On rare occasions, parents take their fight to court.

Texas allows hospitals to impose a 10-day deadline, telling families to accede to ending life support or move the patient elsewhere.

New Jersey is one of the most flexible states, allowing families with religious concerns to continue life support. When teenager Jahi McMath suffered a brain injury during a tonsillectomy at Children’s Hospital in Oakland, California, the hospital declared her brain dead. Jahi’s Christian parents went to court to keep her on life support and won the right to move her to New Jersey. They sold their house to support her care there.

Since 1981, federal law has defined “death” to include irreversible cessation of brain function, even if the heart is still beating. New York and most states use that definition but encourage hospitals to offer a “reasonable accommodation” for families’ concerns and religion.

Hospitals don’t always comply. Families need to know they can push back, and even go to court to buy time. One New York mother asked for a few days with her brain-dead 3-year-old daughter, because once her daughter is gone, “she is gone forever.”

Battling a hospital’s legal team is daunting and expensive, but religious and right-to-life groups often help.

Hospitals sometimes claim it’s in the child’s “best interest” to pull the plug without delay. Don’t believe it. Seldom are brain-damaged patients in pain that would justify ending life, explains Oxford University professor Julian Savulescu.

Besides, who knows a child’s best interest better than parents?

Hospitals argue that pulling the plug preserves the patient’s “dignity.” Archie’s parents were told that nonsense. As a family friend at Archie’s bedside said, “There is absolutely nothing dignified about watching a family member or child suffocate.”

Hospital staff are not intentionally cruel, but they become inured to death and impatient with families.

Beware when they claim ending life is “immensely complex” and appropriately left to experts, as they said about Archie.

The Hippocratic Oath, though somewhat out of fashion, spells out what a doctor should do: “I must tread with care in matters of life and death…Above all, I must not play at God.”

The medical establishment needs to follow that timeless advice and help families deal with death on their terms.

Betsy McCaughey is a former lieutenant governor of New York and chairman of the Committee to Reduce Infection Deaths. Follow her on Twitter @Betsy_McCaughey.

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Patricia A Arsenault
Patricia A Arsenault
1 year ago

Great article and never really thought about this topic/issue. Makes me certainly think about end-of-life care now. Thanks for sharing 🙂

Carol
Carol
1 year ago

When a society stops worshiping God and worships the State, humans are just utility. So it’s not surprising that we are all looked at with a money sign and if you aren’t productive to the State then you are worthless and will be eliminated if you end up in a hospital! Seniors, disabled, and anyone the State hates will fall in this category when they become I’ll! It’s coming if we don’t turn back to God! Jesus said you can’t serve two masters!

anna hubert
anna hubert
1 year ago

Modern medicine and technology can do wonderful things unfortunately to perform miracles is not one of them.

Zue
Zue
1 year ago

During covid a family took their mother to the hospital. She was put on a ventilator. Less than 48 hours later doctors said they were removing her from the ventilator since she could not breathe on her own and would die within minutes. When family talked to her she would squeeze their hand. The hospital staff admitted that they needed the ventilator for another critically I’ll patient. They removed her and she breathed her her own for aver 5 hours and then died. So much for doing no harm.

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