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AMAC Supports Congressional BOLD Initiative to Combat ‘The Scourge’ of Alzheimer’s Disease

Alzheimer's disease scourge combat congressional bold initiative AMACBi-partisan bill in both Houses of Congress may provide them

The Association of Mature American Citizens [AMAC] has endorsed bi-partisan legislation in Congress to focus attention and resources on “the scourge” of dementia and, in particular, Alzheimer’s, which is America’s most expensive disease.

The BOLD [Building Our Largest Dementia] Infrastructure for Alzheimer’s Act [S.2076] and the House version of the bill [H.R.4256] were both introduced last November with bi-partisan support.  Susan Collins [R-ME], Chairman of the Special Committee on Aging, introduced the bill in the Senate.  Rep. Brett Guthrie [R-KY] sponsored the House version.  The measures would provide “research funding … needed to achieve our goal of preventing and treating Alzheimer’s by the year 2025,” according to an online post by Sen. Collins.

AMAC president Dan Weber sent letters of support to Senator Collins and her cosponsors in the Senate and to Representative Brett Guthrie and his cosponsors in the House.  In his messages, Weber stated: “The BOLD Infrastructure for Alzheimer’s Act will empower those living with Alzheimer’s, and their caregivers, by increasing access to education and expanding necessary support services.  The steps outlined in this bill will ensure both patients and caregivers are best positioned to deal with the effects of Alzheimer’s and preserve the financial integrity of our healthcare system by averting a potentially disastrous public health crisis.”

Weber has long been calling for a new focus on Alzheimer’s and says “it’s about time that one of the most devastating diseases afflicting older Americans receives the full attention of the U.S. government.  It is destructive to the individuals who suffer from this malignant form of dementia and their families.  But it also has the potential of overwhelming America’s healthcare infrastructure if it is not checked.”

Weber notes that AIDS, a disease that is in decline and afflicts 1.1 million Americans, receives some $32 billion in Federal funding.  Meanwhile, he points out, the National Institutes of Health [NIH] says it will spend just $1.9 billion this year to fund research on Alzheimer’s – a disease that plagues the lives of more than 5.7 individuals in the U.S. and is expected to destroy the lives of as many as 14 million by the year 2050.”

Former U.S. Surgeon General, Dr. David Satcher, who also served as the Director of the Centers for Disease Control and Prevention (CDC),  “Alzheimer’s is the most under-recognized threat to public health in the 21st century.”

In an appeal for support of the BOLD Act, Satcher said that the legislation would create a “public health infrastructure across the country to implement effective Alzheimer’s interventions.”  It would:

  • Establish Alzheimer’s Centers of Excellence that would increase early detection and diagnosis, reducing risk, preventing avoidable hospitalizations, reducing health disparities, supporting the needs of caregivers and supporting care planning for people living with the disease.
  • Provide funding to help public health departments implement effective Alzheimer’s interventions.
  • Make available funding for the Increased data collection, analysis and timely reporting needed to support research aimed at controlling and controlling the disease.

“The BOLD Act provides a new, sorely needed perspective on Alzheimer’s disease and much needed, substantive support in the quest for a cure.  Along the way it will help researchers to come up with new, more effective ways of managing this insidious form of dementia.  Meanwhile, the more we learn about the pathways of Alzheimer’s with help from the public sector, the more effective medical researchers in the private sector can be in checking the progress of the disease among older Americans,” Weber said.

 

ABOUT AMAC

The Association of Mature American Citizens [AMAC] [https://www.amac.us] is a vibrant, vital senior advocacy organization that takes its marching orders from its members.  We act and speak on their behalf, protecting their interests and offering a practical insight on how to best solve the problems they face today.  Live long and make a difference by joining us today at https://amac.us/join-amac.

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Bud Donahue

As someone in the early stages – WITH a diagnosis already, I read with interest the response so far, and find them depressing… Sorry… I made the decision early on (after that diagnosis) to become educated on the subject, which led me to an exercise program, a new food intake (sometimes called a ‘diet’) regimen, and better lifestyle habits… The results have been encouraging, according to The Missus and the Neurologist.. Nevertheless, I KNOW I am slipping – I hold myself to a higher standard than most, and fact is, I can’t maintain that anymore, and that’s a darned shame… I had a lot to give, and it appears much of that is going to the grave with me unused… If you aren’t ‘there’ yet, do yourself a major favor – Assume you will be, and start now “Fighting the Fight” against the ravages of “The Big ‘A’ “… You… Read more »

PaulE

To stay on the topic of the article, the only way this or any other so-called BOLD initiative (Washington code speak for yet another money grab of taxpayer dollars for a set of loosely defined objectives) should be allowed to go forward, is if the funding for the ENTIRE BILL, over the course of its projected lifetime, is provided by de-funding wasteful or non-productive federal programs. The federal government loves to shower the taxpayers’ hard earned money on everything from studying the lifecycle of various fish and wildlife to topics so arcane, that even the program’s sponsors have a hard time describing what the benefit would be from their so-called research. So this bill needs to explicitly identify where its funding for all these activities will come from for the projected lifecycle of this program or I would have to say no. Again, there are plenty of wasteful or completely… Read more »

rvgrandma

This is such a horrible disease that is being ignored by the powers that be. People usually will not get involved until it affects someone close. My grandmother, mom, 2 aunts and an uncle all had it, one sister recently died from VaD/AD combo, another brother has AD. My father-in-law (20+ years before death), his brother and sister and his mother had it, my sister-in-law was diagnosed at 55, died 9 years later. My MIL literally killed herself caring for my FIL – dropped dead of a sudden heart attack and he lived another 9 years. My husband was diagnosed at 60, we are now in year 11. Not my way of choice to spend our golden years. I am tired. Like many I pray the Lord take him before he has to go through the end stages of this horrid disease. He is at the point in the disease… Read more »

Diana Champion

Before the government spends billions on research they should read “The End of Alzheimer’s” (The First Program to Prevent and Reverse Cognitive Decline) by Dale E. Bredesen, MD. The research has been done, but “the clinical trial system is not set up to test a comprehensive program”, it is designed as a one-size-fits-all monotherapy approach. Just look at all the various illnesses that Humira is supposed to remedy and listen to the list of side effects it may cause, some of which can be fatal.

Dan W.

My grandmother (my Mom’s mother) passed away from Alzheimer’s 40 years ago. Of her two daughters, my Mom passed away from Alzheimer’s last month and my aunt is in an assisted living facility with the disease. My Mom and aunt had six daughters combined (my generation) so in 10 to 15 years, this disease could return to our family with devastating effect.

So far, medical science is stumped and can barely treat the symptoms. Any treatments to date have been both minimal in impact and temporary in duration.

The key to unlocking this puzzle is more research which means spending more money. With everyone living longer as other diseases are successfully treated, better to spend more money on Alzheimer’s now than to pay the insurmountable bill for nursing home and custodial care charges which we will be facing if no treatment is found in the near future.

Michelle Morgan

Did the article mean to say 5.7 “million” individuals, not 5.7 individuals?

Barbara Orsag

The biggest problem with having the government involved is their history of squashing, ignoring, stealing, persecuting real & often inexpensive cures & treatments discovered by the private sector. There is already much promising research into prevention & treatment by the private sector. But if it doesn’t enrich the medical establishment, including big pharma, it will be detailed by FDA & other powers that be.

Donald Walls ALS,LLC

AMAC: I see NO HELP in your out line , more cost and no real help. for Alzheimer;s Patients. Lilly here in Indianapolis has spent Millions of dollars and came up with no cure and no help. Your out line will not help either. Just spend more money. What is the answer ??????. Our Company Assurance Locking Systems, LLC Design and Manufacture a Portable Alzheimer’s Door Lock that will keep Alzheimer’s patients safe inside the house. We work with Caregivers to keep their Patient safe. With NO HELP FROM AMAC, AARP and VA. and Alzheimer’s Assoc. and Mayo Clinic . WE DO more Alzheimer’s Caregiver then any of the above companies, by keeping Alzheimer’s Safe inside their house and will continue with NO HELP. The Alzheimer’s Caregiver our so Thankful for our Lock and other help we offer. Just remember (THERE IS A WORLD OF DIFFERENCE BETWEEN HELP AND ADVICE… Read more »

Emily

Read up on the new research reports on the affects of statin drugs and their relation to ALS, Alzheimer’s and other neurological diseases. Get rid of statins, learn to control your cholesterol with diet. They won’t get rid of statins or Alzheimer’s disease anymore than they will cancer. Both are big moneymakers for the drug companies. When is the last time you read ANY reports on ANY cures on ANYTHING? Only very expensive “treatments”. Money is the name of the game. Some of this crap is making us sick, not well.

Catherine

This is such a horrible disease. It took two close family members in the last 3-4 years. Please consider supporting this bill by calling, emailing, or writing your representatives.

Linn Stevenson

How to combat Alzheimer’s?? Try being unmedicated and stop “preventive” medicine like flu shots. People have no idea what’s in a lot of this stuff as well as proven outcomes. Most studies are industry funded which means they’re manipulated in favor of Big Pharma.

Rik

If you want to avoid Alzheimer’s, just avoid doctors! … Today‘s medical profession are nothing more than legalized drug pushers! Nobody ever gets healed using drugs, you just develop side effects that more doctor prescribed drugs give you. I investigate natural alternatives that actually heal you with NO SIDE EFFECTS! Doctors today are quacks, healing nothing and seem to view their patients as dollar signs. No different than attorneys who never met the truth that couldn’t be looked at as with reasonable doubt. Both are just Professional Quacks!!! … And you wonder why our country is no longer recognizable with Liberty and Justice for all!!!

V. Eckstrom

My father in law has Alzheimer, he is 90 , family has been dealing with it for about 15 years. I am opposed to giving any money to research for any so called cure for any disease through the mainstream research system that we presently have. NIH controls the grants for research and if they are not looking for a drug to treat symptoms then researchers will not receive grants. This system only benefits Big Pharma. I have family who are in the medical field, and from the beginning of their studies they are told disease after disease has no cure, therefore the major goal is to treat the symptoms with of course prescription drugs. Throwing money at something is not always the answer, the system we have needs to be changed. The FDA , Big Pharma and the food industry in this country need to stop using the people… Read more »

Jack Lyon

Getting genetically modified organisms (GMO’s), glyphosate, and other toxins out of our food would be a great first step in reducing Alzheimer’s pand would probably reduce prevalence of several other diseases as well.